Cystine kidney stones form because of a rare inherited genetic disorder called “cystinuria.” Cystinuria impacts the reabsorption of the amino acid cystine which leads to the formation of kidney stones. Cystine kidney stones impact about 1-2% of the population (roughly 1 in 7,000 people worldwide). Unfortunately, cystinuria is a life-long condition that can be controlled. But, not cured.